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it's been a day of it, I'm afraid :(

Oh dear. Livejournal have just attempted to "upgrade" their Scrapbook function. Already baroque, it is now quite broke. I've managed to figure out the right route to just-about upload pictures, but any attempt to change captions, annotate, add tags, etc. is instantly setting the picture to private, while also making it uneditable and undeletable. It's really quite eccentric. I also have a lot of waste data I can't do anything with (unless those are ghost files -- some of the effects I'm getting certainly suggest that they don't really exist).

Ugh. My poor little sister has very bad rheumatoid arthritis. Anyone with good stories or reassurance, please weigh in. She says she looks very strange -- thin, with swollen bits around the joints. Poor thing.

It may be a little harder for me to continue with the tenovertwelvers as I was using a Scrapbook Gallery. But look! I found a route, briefly, through the bugs. pomma_pense's compilation Uniform Grey is (appropriately enough) the coldest of all the compilations, bitingly chilled and jack-frost lacy with delicate spreading icy winter tales. I really liked title track Uniform Grey but Mortal City by Dar Williams takes the crown -- her strange halted story-songs don't always work for me, but this one is a treasure.


uniform grey
uniform grey
By pomma_penses

Comments

( 7 worms — Feed the birds )
girlycomic
16th Mar, 2010 22:32 (UTC)
My CDs arrived in the post today, looking forward to listening to them.
(Deleted comment)
cleanskies
17th Mar, 2010 07:17 (UTC)
she's changing her diet
But the really important thing at the moment is getting the medication that stops her immune system attacking her uder control.



cleanskies
17th Mar, 2010 07:27 (UTC)
She's not really eating at the moment and she was thin to start with, so I think that making suggestions about restricting her diet might not be the best approach. She's got lots of medical help and advice going on -- good old NHS -- and she's certainly aware of the dietary approach, she mentioned it to me.

Some of the medications are based on a similar principle to the therapeutic effects of applying stinging nettles -- she's in Devon, so goodness knows. Maybe they'll use bees.

Edited at 2010-03-17 08:01 (UTC)
pomma_penses
17th Mar, 2010 07:46 (UTC)
Here's my positive story then: I have a good friend who suffered from rheumatoid arthritis for several years (started in her late teens, I think). Due to a wonderful medication (some sort of injection) she is now off disability and does everything any of the rest of us do.

That is probably the gloomiest mix I've ever put together. :D
cleanskies
17th Mar, 2010 08:05 (UTC)
thanks!
That's exactly the sort of thing I need to hear.
buddleia
17th Mar, 2010 09:39 (UTC)
A bit removed, but...
A friend of a friend is in her early twenties, a circus performer and was very active until she was crippled almost completely by rheumatoid arthritis. Her whole body wasn't working. She has since made an almost complete recovery, is on some kind of medication (I think they had to tweak it a bit) and hopes to return to doing back flips and trapeze work. She apparently swears by veganism, but I only know about her through my evangelically vegan friend.
cleanskies
17th Mar, 2010 19:54 (UTC)
ah, thanks!
It's enorously helpful to hear these stories.
( 7 worms — Feed the birds )